Instructuons:
Please attach labs and medical reports if possible. We mainly track the following:
- SFN: Skin biopsies, QST
- Autoantibodies: Celltrend & ganzimmun, the Cunningham panel
- Brain imaging: MRI and PET-scans
- Lumbar punctures
- Cytokine panels
- Gut microbiome panels (GI MAP)
Write a short summary of your case in the message box below:
- Symptoms
- Medication trigger(s)
- Length of time with PSSD
- If you had COVID or the COVID vaccine prior to any of the tests
- Any other relevant complications (pre-existing disease states, infections etc)
- We ask that you clearly state your preferred name/synonym + your user names on discord and Reddit (if applicable) so we don’t add double for data we might already have.